What a week it has been. We graced St. Luke's ER with our presence twice...and let me tell you if you go on a Friday night it is very interesting. Rob was quite amused with the drunk man in the room next to ours...who won the highest blood alcohol level of the night at, wait for it, .4! Holy crap how do you get that drunk?
Rhys had a horrible case of croup and a nasty fever to go along with it. Unfortunately, when Rhys gets a fever it also contributes to horrible seizure activity.
Long story short, our neurologist prescribed a great drug that has been controlling his seizures phenomenally well. The second ER trip sent us home with a home nebularizor treatment, inhaler and steroids for his lungs. Rhys struggled with his body temperature and was a clingy, sad boy for a good week....but I can now say he is back to his old self. Thanks to our "village"...you know who you are...for all the well wishes and support.
I can't update without a picture, so here is my birthday and anniversary present. I begged for family pictures and I recieved. They are more than I could ask for. If you have ever tried to take a picture of Rhys you know it is not an easy task...and our photographer came through. I'm so happy to have pictures of all of us!
Lastly, in case you are interested, some of you like to hear new things in terms of Angelman research...this is an informative and encouraging article I came across. You can find it here. Someday, my dream might just come true. To hear my little man say" I love you Mama"...I can't even imagine!
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