Saturday, November 19, 2011

Sickness has left the bulding...hopefully!

Randomness to follow...

What a week it has been.  We graced St. Luke's ER with our presence twice...and let me tell you if you go on a Friday night it is very interesting.  Rob was quite amused with the drunk man in the room next to ours...who won the highest blood alcohol level of the night at, wait for it, .4! Holy crap how do you get that  drunk?

Rhys had a horrible case of croup and a nasty fever to go along with it.  Unfortunately, when Rhys gets a fever it also contributes to horrible seizure activity.

Long story short, our neurologist prescribed a great drug that has been controlling his seizures phenomenally well.    The second ER trip sent us home with a home nebularizor treatment, inhaler and steroids for his lungs.  Rhys struggled with his body temperature and was a clingy, sad boy for a good week....but I can now say he is back to his old self.  Thanks to our "village"...you know who you are...for all the well wishes and support.

I can't update without a picture, so here is my birthday and anniversary present.  I begged for family pictures and I recieved.  They are more than I could ask for.  If you have ever tried to take a picture of Rhys you know it is not an easy task...and our photographer came through.  I'm so happy to have pictures of all of us!







Lastly, in case you are interested, some of you like to hear new things in terms of Angelman research...this is an informative and encouraging article I came across.  You can find it here.  Someday,  my dream might just come true.  To hear my little man say" I love you Mama"...I can't even imagine!


Tuesday, November 1, 2011

Boo

I must have answered the "how much longer until we trick-or-treat?" question seven times at least yesterday, and the sugar buzz from the Almond Joy's I pocketed from Mom and Dad's is finally fading.

But, here we are--the first of the end-of-year holidays, and I am drinking it up.  What a treat it was (no pun intended) to have the whole family be able to participate.  ROB...yes ROB...had the night off and was able to assume the wagon puller position.  I miss having him around to participate in these things with me.  He is my partner in crime and it was amazing to celebrate as the Vian party of five.

My little night owl
She's a nice witch
We all know that I am in love with holidays. I dig the whole over-hype and sparkle of decorations and Target setting up a small city of Christmas aisles the day after Halloween. I buy into the great to-do of kitschy bathroom towels embroidered with snowmen and freaking pinecones, and once one holiday is over, I am settin' up the excitement shop for the next one around the bend.


I fly my holiday freak flag proudly and am finding more and more ways to unfurl its enthusiasm on the in-between too.  It is just so much fun with these guys.


Bumblebee and his brother
But today the call for a clean-up is here and I am hoping for a quick decrescendo for my sugar buzz, I am grateful both for a fun night and the fact that it won't happen again for another year. That's the beauty of holidays...absence makes the heart grow fonder.

It's November, Friends. November.