Team Rhyser...ASF Walk-a-thon

 

Angelman Syndrome has taken us on one hell of a ride…
but we can tell you this though…
We have changed. Our eyes have been opened to the broad spectrum of beauty, the value of uniqueness and the amazement of the common thread that binds us all regardless of the color of our skin or the makeup of our chromosomes. How could I not have been aware of this magic?
We are grateful for the pain that propelled us forward, without it; we wouldn't have known the joy of this place.
So I am thrilled to be taking part in our very first ASF walk. I won't walk alone, but with some very powerful women by my side. I will walk proudly with Rhys, because I know what this walk can do.
The One Step Closer ASF National Walk has been a vital source of funding support to the Angelman Syndrome Foundation since its initial launch in 1999. What started with one volunteer walk site has grown to now include 29 walk sites across the country and is recognized as the signature fund-raising event for the organization. By supporting the National Walk we are helping researchers at ASF move one step closer to improving the lives of those impacted by AS through information, education, resources, support, advocacy and research.

Let me say that more clearly. The mission of the One Step Closer ASF National Walk is to create a culture that fully accepts and includes our little man.
We want this life-changing year to propel us forward…to learn and except. To work towards a cure. ASF works towards this, so we are thrilled to support their efforts.
Like many others who set out on this journey, we have struggled through a range of emotions. Support came though--through loving friends and family, through education, through falling in love with our son who turned out to be the greatest blessing and just what our family needed. We are learning more every day, and, through Rhys, we've discovered a new world of acceptance and opportunity for the individuals in our world with AS.
So we ask you, our friends and family who have supported Rhys and our family…to help us and support the Angelman Syndrome Foundation. We are grateful for your efforts, and hope you will take great pride in the important difference that the funds raised will make.
Our fund-raising page can be accessed here, or the ASF button on the top of my blog.

Thank you...

Love, the Vian’s