Wednesday, February 29, 2012

Go Patriots!

It happened.  My little man is growing up.  It was a big day around these parts...Bodie's first football practice. 

From the day we found out we were having a boy, I dreamed of he and Daddy running out the door to practice. Football is such a big part of our lives, and its now apart of the next generation.

I remember my parents attending every game, race or meet.  They sat in the stands and cheered us on.  Until you become a parent you don't realize how cool it is to see your offspring doing things.  Cool things.  Grown up things.  I'm not sure who is more excited about this new venture...me or Bodie.  Probably a close tie. 

And while I used to laugh at moms who made insanely big deals out of the this kind of stuff, I made an insanely big deal out of the first practice.  "For God's sake its just practice", Rob said...easy for him to say he's been to a million.  I wasn't invited.  "Just Daddy is going 'cause he's my coach".  Thanks Dude...Mommy's crying inside.  Truth is Bodie needs this.  Last week he was amazing.  He explodes with compassion and love for his little brother.  He's the "middle child"...my little mama-loving, cupcake-baking, monster truck driving, memory-making, comedic homebody and he needs something just for him. To build his confidence, to express himself, to move, to laugh, to meet new friends. He needs this.

So we went on a special shopping trip for cleats and compression shirts.  Yeah, t-shirts would have worked, but he had to have them and I couldn't say no.  He's seen so much football...the kids knows what gear is required.  We have talked endlessly about the fact that this is flag football not tackle football.  He couldn't wait...I couldn't wait. 

He woke up ready to go.  Try telling a four year old he has to wait 7 hours until practice.  Not fun...but he decided that he would help do some cleaning so Daddy wouldn't have to when he got home and they could dash away to practice.  I do feel a twinge of guilt that I didn't tell him that Daddy wouldn't have vacuumed when he got home from work...just a twinge :)


So off they dashed...I begged Rob for pictures...but he didn't comply.  "You try getting pictures while coaching ten 4-6 year olds.  It was chaos and I couldn't swear," coach Rob informed me.  You better believe I'll go paparazzi on him come game time :)


Long story short...he had a blast a practice.  He did jumping jacks, "cause that's what guys who play football do."  His body was sore this morning, but he informed me that he "felt like a million bucks!"

So games start March 10th at Settler's Park in Meridian.  You can bet plenty of pictures will be supplied in the weeks to come.  Go Patriots!









Wednesday, February 22, 2012

Same s%*t different day

We are still in the hospital. We are still waiting on test results and to have more tests completed. If you test McCall for something, chances ate it will come back positive. So far she has an ear infection, pneumonia in her left lung, and kidney infections most likely in both kidneys. Oh and she has influenza so we are on hospital lockdown, which I think just means that they want to see just how many disposable gowns and masks that they can charge us for. Doctors will do kidney ultrasounds later today to see how their function is and if any damage or abnormalities exist. So fingered crossed these look good. She is on broad spectrum antibiotics until cultures come back to tell us which ones are and are not working. Basically we can't leave until the chest x-ray shows an improvement in the pneumonia because based on all the IV fluids she has been given, they can actually slow down healing. Double edged sword :( She is in pretty good spirits, but at times really confused. It scares me because it shows just how sick she really is. But it's funny too. Yesterday out of nowhere she said "Daddy said Justin Beiber died.". My fad and I almost lost it. When asked about this Rob assured me that he had had no such conversation. So today is more hurry up and wait. And wait and wait.

Monday, February 20, 2012

Miss McCall update

Well I apparently got a little too comfortable in our routine, and just like that we are right were we don't want to be. McCall woke up Sunday with a high fever and chills. Then started the vommitimg of Mountain Dew colored puke. TMI I know. The weirdest part was the abdominal pain she complained about. I feared appendicitis. After consulting with her pediatrician, who by the way is the coolest Dr. in Boise, we decided that a visit to our second home (AKA St. Luke's) was in order. Long story short, since I'm posting from my phones keyboard, lots of tests later, and we have come up with pmenomina and kidney infection. Dr's are kind of baffled at the combination and how her symptoms have presented, but apparently they don't know how us Vians roll! So as it stands we are aggressively treating both with antibiotics. We are hydrating her like no ones business. Her fever is under control for the time being. We will do more chest x-rays tomorrow to address the pneumonia and it sounds like also an ultrasound of her kidneys too. Stay tuned. To top off an already lovely day...now Bodie has a fever of 103 :( You might have to visit me at the funny farm after my nervous breakdown.

Saturday, February 18, 2012

Ebb and flow


 

Our weekend has started out quiet and homey, just the way it's supposed to be.  I am feeling content today. Exactly where I'm supposed to be--over my funk, productive, reflective, slow and steady.  
 
 For all the times I feel an imbalance—feeling too busy, uninspired, exhausted… when's-it-going-to-iron-out--it's assuring to know, there is a rhythm to all of it. Right now, in this tiny moment of time, work and family feel so appropriately melded. Dare I say we have molded into some sort of routine. 
 
I feel both inspired and at peace; motivated and content; excited and calm; and even if that balance shifts tomorrow, its presence right now is enough to remind me, it works out. Ebb and Flow, Shift and Settle.

"look mom...I got your plants again.  aren't you proud of me?"



McCall and Bodie both got to go to Build-a-Bear Workshop for the first time.  McCall is giving her bear a bath :)
  
Long story short, the Vian family is good. Busy, hectic, CRAZY...but sooo good.  Loving our little routine in our little corner of the world.  

And so lucky we were able to visit the cabin this winter.  We had so much fun doing nothing!
Best Daddy evah...he drove to the cabin with McCall's bear so she wouldn't get car sick on it. 
Lots of fun in the weeks to come.  I'll try to keep my long lost blog updated...

Friday, January 6, 2012

Randomness in the New Year

What a way to ring in the new year...knee deep in throw-up and...well you get the picture.  Yes, sickness has again hit us.  And by "us" I mean Rhys and I.  We are lucky...sarcastic lucky.  Like run away as fast as you can if you are with us in a lighting storm...run fast the oppisite direction.  We promise not to be mad :)

Anyways...I *think* we are finally on the mend.  We even ventured out yesterday and Rhys was back to his ol' self...
  note to self...his arms are growing at least an inch every day so nothing is safe...even pushed all the way back on the counter...Target popcorn included!

Which brings me to another point.  I now have another excuse to LOVE Target. If you were browsing through  the Target ad last Sunday you may have passed right over the adorable little boy in the bright orange shirt smiling at you on page 9!  And if so, I’m glad!
 
The reason I’m glad?  Well, that stylish young man in the orange shirt is Ryan. Ryan just so happened to have been born with Down Syndrome, and I’m glad that Target included a model with down syndrome in their typical ad! :)


This wasn’t a “Special Clothing For Special People” catalog.  There wasn’t a call out somewhere on the page proudly proclaiming that “Target’s proud to feature a model with Down syndrome in this week’s ad!”  In other words, they didn’t make a big deal out of it.  I like that. 

While Ryan and Rhys have very different syndromes, it still moves me.  Even though Target didn’t make a big deal out of the fact they used a boy with Down syndrome as a model in their ad, they said plenty. 

  1. They said that kids born with missing or extra chromosomes deserve to be treated the same as every other other person on this planet.
  2. They said that it’s time for organizations to be intentional about seeking creative ways to help promote inclusion, not exclusion.  (It’s no accident that Target used a model with Down syndrome in this ad; it was an intentional decision.  If want the world to be a place where everyone is treated equal we can’t just sit around and watch the days tick away.  We have to be intentional.  We have to do something.)
  3. They said that companies don’t have to call attention to the fact that they choose to be inclusive in order for people to notice their support for people with disabilities.  In fact, by not making a big deal out of it they are doing a better job of showing their support for the special needs community.
  4. They said it’s important for the world to see people born with disabilities with a fresh set of eyes.  That it’s time for us to lay down all the inaccurate stereotypes from the past and move forward embracing the future with true and accurate ones.
So thanks Target...I'll give you my money any day!

OK...back to the New Year.  2012 is going to be grand. I've been thinking about resolutions--because that's just what you do this time of year. I want to find more ways to let the people I love know I appreciate them. I want to let go a little more--of fears, of insecurities, of the things that hold me back. Wild and free, Baby. Wild and Free.  So Happy New Year!




Tuesday, December 20, 2011

The Incident


So, let's see--it's T-minus-six-days, until Christmas so I should be ready and enjoying the season, right?  Wrong.  Really I have so much left to do, am slightly freaking out and…I know it sounds paranoid but The Little Drummer Boy song is stalking me.  Every station, every store, he’s everywhere and I can't bear to hear "Pa-rum-pa-pum-pum" one more time. We get it. Your drum makes a noise.

Anyways...I can finally try to pull myself out of this holiday rage now that work has settled down.  Who knew that the President of Gap Inc. would want to shoot the shit about Boise State Football?  My boss nearly died, and I just rolled with it.  Good thing I know a guy who taught me a thing or two!
Rhys got some chocolate while the kids did gingerbread houses...and no seizures!

We are have fun with “Friendly the Elf”.  He made his appearance last year and the kids couldn’t wait for him to come back.  However, we did have an incident. 

Rob’s parents are visiting for the holidays.  Papa Bob wanted to dip into the candy dish, which happened to be where Elfy had landed for the day.  All the sudden a blood-curdling scream, the kind that makes the hairs on the back of your neck stand up and prompts an instinctive reaction of Bolt and Get to my Kid. You would have expected blood. "I thought a poisonous snake bit her," my father-in-law admitted later. Rob called me at work and said, “We have a problem.”

So when I got home McCall was being so brave and trying not to cry.  

“Tell me what happened McCall”, I said.

"Papa Bob....Papa Bob....(gasp, gasp)," she couldn't finish.

"Papa Bob what? Papa Bob WHAT?" I insisted.

"Papa touched the elf."

And this is the point I admit--having an elf might very well @*!# up your kid.

I responded quickly and (ir)rationally. I drafted a letter from Santa, on his own stationary of course, which had “magic dust” (glitter and sugar).  Santa instructed her to sprinkle the dust on Elfy so he could get his magic back.  Turns out it worked, because this morning he was taking a marshmallow bath in the bathroom!
 
"This is ridiculous," Rob mumbled and laughed. And I know he's right, but I wanted to save the magic. I mean, you should have seen their face when I made elf donuts the other day (cheerios with sprinkles).  They smile the biggest smiles every morning every morning when they find him in a new spot, and there's something so beautiful about the power of imagination--the ability of a really good story to add wonder and magic and tradition to our Decembers. But I also don't want my kids to end up in Christmas therapy someday. 


Mr. Pouty Pants.  He wasn't ready for me to take a picture :)

 And that's how Christmas magic is reinstated after a small elf disaster. The End.
 

Saturday, December 3, 2011

FAST Gala

When everyone else was watching the BSU game Saturday night, I was streaming the 2011 Foundation for Angelman Syndrome Therapeutics Gala...live from Chicago.  It's not that I don't love me a lop-sided Bronco game, but I simply had to tune in to hear fellow AS parent Colin Farrell.  He was the guest of honor and so inspiring.  It is a blessing to have a celebrity with a voice...and his message was simple and clear.  "Hope reigns supreme." 

FAST and their researchers are doing amazing things.  The Gala has so positive and hopeful, and makes me believe in my heart that someday soon my little man will be talking and walking and its because of this foundation that he will live up to his highest potential.

This article highlights the gala.  I would love to try to make it there next year...too bad I work retail!

FAST produced a video here.  It is 30 minutes long, but it moved me to tears to see other angels.

Why am I boring you with this?  Well, if you, like me, have nothing better to do next Saturday night tune in because the 2011 FAST Gala is being filmed by NBC and aired PRIMETIME on NBC at 8pm.  Bob Costas is featuring 4 charities around the country, and FAST is one of them!  It is so exciting that awareness is being grown.

So thanks for reading.  Thanks for bringing awareness by supporting our little man.  Thanks to the family and friends that surround us on this journey...I am forever grateful...and hopeful!